Showing posts with label pneumonia. Show all posts
Showing posts with label pneumonia. Show all posts

Monday, December 29, 2014

CHAPTER NINETEEN: White Balloons

SHE IS
…two years behind the kids she
Graduated high school with and
While they will finish college this year
And face—for the first time—the real world
She has already seen it.
She has haunted hospital corridors and
Scrambled eggs for her younger brother and
Kept the home fires burning while
One parent kept falling down and
The other kept picking him up.
She is not invincible, and sometimes she cries
Because life is not fair.
But unlike her peers who are ensconced being
Ivy-covered walls and plodding through classics on
Ancient French poetry and bio-physics

She knows it.

APRIL 23, 2001. 4 PM.
            With a few tears and a lot of prayer, Bonnie and Nicholas have decided to be “just friends.” It was, they both content, “almost right.” With two such lovely young people, both committed to God and His plans for their lives, one wonders why it couldn't have worked. What was it that was missing, keeping them from filling the missing pieces?
            “Something,” Bonnie has said early on in the relationship, “just isn't there.”
            They tried to make it work, tried to fall in love with each other. The best they could do was genuine affection. It is more, of course, than a lot of people ever manage to have. But for these two young people, it is just not enough. They deserve head-over-heels, fly-me-to-the-mood, heart palpitations and sweaty palms love. And someday they will find it. They are not willing to settle for less than what they know God has to offer them. They each know that God has designed someone out there especially for them. They’re willing to wait.
            Good for them. Good that they recognized that all the things that were right with the relationship did not make up for what was wrong. Good that they think they can still maintain a friendship. They still laugh together, but it is slightly hollow. However much they try to put a good face on it, it is still a loss. And our lives seem to be continually full of losses.
            I, too, feel the loss. I am grateful to Nicholas, who entered our lives with a toolbox in his hands. In the few months he and Bonnie dated, he installed light fixtures in the basement and the foyer, rewired the outlets in the house, and installed a new bathroom floor. Not only have his repairs strengthened my house, but they have strengthened my daughter as well. The last two years saw her spending far too much time in hospital rooms and not enough time being young. Nicholas helped her find the twenty-something inside herself again.
            Yet even as my daughter packs Nicholas into a memory corner of her heart and tries to move on, I sense in myself a sadness that is out of keeping with such a commonplace occurrence. Daughters break up with boyfriends all the time. I cannot seem to shake the notion that my daughter is doomed to seek out the wrong young men, always believing that she can somehow remake them. Nicholas, for all his gentleness, had problems with anxiety and hyperactivity. And the boy she dated just before Nicholas seemed always on the edge of despair.
            “Don’t you know any normal boys?” I ask Bonnie.
            “And,” she counters, “how would a normal boy fit in around here?”
            She is right, of course. Our lives have been off-balance for so long that we wouldn't know normal if it knocked on our door. I take a long look at my daughter. She is twenty-two and lovely. She has a tender heart and a love for God. Her smile lights up every freckle on her face and her blue eyes sparkle with delight. Her gregarious personality attracts people to her. Some of them seem to be the wrong sort of people. Her brothers, I tell her, always brought home the Lost Boys. She feels the need to date them. Somehow, she thinks she can save the world.
            She reminds me too much of me.
MAY 2, 2001. 9AM.
            I float, a round, white balloon drifting towards the sky and the sun, slowly breathing in and out. Each breath is labored as I try to focus on my lungs. I can still feel the congestion in my chest and hear it in the rasp of my voice. An all engulfing tiredness descends on me in the middle of the day, tempting me to close my eyes even as I struggle through the last class of the afternoon. I would love to give in to it, allowing my limbs to succumb and move no more, my brain to shut down and doze for a while. Instead, I keep floating in my white balloon existence, struggling to keep both feet on the ground when what I really want is to be lifted into the air and carried away on a current, suspended above the green earth.
            Pneumonia, the doctor said when I finally gave into my daughter’s pleading and went. I stayed home for a few days, melting into my pillows but not really resting. Ron paces the floors. The few hours he is able to work each day do not really occupy him much and he asks me constant questions about going to school, setting goals, becoming a “better person.” I am weary enough without his interference. I return to school, still in my balloon state, glad to be floating away from Ron.
            It is not wholly unpleasant, being a white balloon. Nothing—no worries or cares or injuries—quite breaks through the haze. I can fall asleep at the blink of an eyelid, saving precious time usually spent tossing and turning while I wrestle with the problems of the world. Floating white balloons have no problems, except sharp points, of course. These seem easy enough to avoid as I hang in the air.
            My thoughts in this white haze are not always coherent, but they are always gentle. Warm sunshine. Pink roses. Delicate china teacups. With each rise and fall of my congested lungs comes an image of rainbows and tulips, dancing just at the edge of my mind.
            What am I on, wonders my daughter. Nothing. I stopped taking the antibiotic days ago because it made me feel out of control. Or maybe it was the fever that did it. No matter. White balloons have no fevers.
            Eventually, I know, I will need to come down to earth again. Even now, harbingers of disaster lurk on the horizon. Nicholas has taken to calling every night and continually asks Bonnie if she likes him. If she says yes, he laughs and tells her she is weird. When I land again, I will probably find Nicholas’ behavior annoying. I will try to remember that he is both dyslexic and ADHD. Somewhere in the past few days, my mind recalls glancing at an article on autism and the human brain and other learning disabilities. But such deep thoughts are above my capabilities right now. Ron is experiencing his own anxiety problems. Dennis phoned yesterday to say that he is getting laid off and will need some help with the rent money. The stress is just waiting for me, piling up and trying to reach me on my balloon voyage.
            Avoid sharp points, I keep telling myself. Just keep floating.
MAY 23, 2001. 8 AM.
            “Eleven days” is now written on my chalkboard. Am I anxious and eager for the school year to end? I am not fully recovered from my bout with pneumonia. I still feel jet-lagged and have trouble breathing. What I need, I tell myself, is a week in the sun, basking on the beach at Rehoboth and renewing myself in childhood memories. Chances are good that I will not get it. Something always interferes with my escape attempts. Dennis needs help filling out his unemployment forms and is worried about making ends meet. I seem to find it easy to place my oldest son in God’s hands, but I cannot do it with Bonnie. I continue to feel the loss of Nicholas and know that I am too wrapped up her life. But I do not know how to extricate myself.
            Bonnie, Allen, and I are the survivors of the Titanic. We share bonds that no one else does. Dennis, beloved child, was more peripheral to the events of the last two years. I often think I have neglected Allen these past few months, focusing on my daughter. He says he understands. “You've been sick, Mom,” he says. His Mother’s Day card to me was so sweet! It said that he often though he’d like to be as “smart as you are. But that’s way too much trouble!” The card ended with, “Good thing I’ll always have you to help me.”
            I need to find time to contact the family counselor that Margaret recommended. I have waited too long already, but white floating balloons do not need to see therapists. I feel like we are all in a state of limbo. I find myself bursting into tears and not being able to name a cause. Last night a great sadness overwhelmed me and I could not help but cry. It was all over just as quickly, but I know that I need to find someone to talk to. I have two weeks left of school and then graduate classes this summer. I cannot fall apart now.
            Is it all just stress and exhaustion? I get angry at minor things. I seem to always be mad at Ron. I obsess about Bonnie. I've become resentful of the choices I have needed to make for my family, choices that may not have been right for me.
            I am both confused by and angry at Ron. He has turned my life upside down for so long! Each day when I drag my weary self home, he and Allen are plunked down in front of the TV, Why isn't the laundry done or dinner started? Why aren't they at the park or out back playing basketball? But I feel guilty if I complain and Ron becomes defensive. He honestly thinks that doing the dishes and the laundry once a week makes him an exemplary husband! Yesterday I yelled at him for napping on the deck after sitting on the couch all afternoon.
            Lord, I need help. I recognize this. Send someone, Father, someone who can help me. I am so used to being in control, but now I cannot control either my emotions or my thoughts.
            What is wrong with me?

Monday, July 21, 2014

Chapter Eight: Not Yet



PEOPLE SAY
People say that
They know how I feel
And they compare this last season
That Ron has been hospitalized to
“the time my mother had pneumonia”
Or
“the two weeks I was on bed rest before the baby was born.”
Trust me.
It is not the same.
Just as I don’t know what those times were like for you
You cannot possibly know what this has been like for me.
I have been, for all this time,
Without my partner, my soul mate, my sounding board.
I have coped with the world
Alone.
I feel as if an arm has been severed from my body
As if my heart has stopped beating
And I have been holding my breath for
A long, long, time.
I kept putting one foot in front of the other because
The world has not stopped
But kept its turning. And I have faced it

Alone.
So, to those of you who offer comfort,
I give you my thanks, but know that
Despite your compassion
You don’t really understand.
Only God does.
Lord, help me to remember this lesson,
To offer compassion
Not comparisons.
To have the courage to say,
“I don’t really know what this has been like for you,
But God does.”
In Him
I am never
Alone.

           

                                                            CHAPTER EIGHT.
APRIL 30, 2000. 1 AM.
            Early on Easter Sunday, I sit at my laptop and write a letter I will never send:
Dear Other Driver,
            I’ve thought about you a lot this week as we approached the holiest of Christian holidays and Ron underwent yet another operation to repair the damage your truck did to his body. This was a second thoroscopy. Do you know what that is? Neither did I until recently. Surgeons needed to make an incision in Ron’s back between his third and fourth ribs, spread the ribs apart, and insert a tube to drain the fluid that has collected around his left lung. They made another incision into his chest to re-inflate the lung. This Easter Sunday, while his family attended church services, Ron remained in the hospital, a pleuravac pumping out the fluid, a tube still draining his pancreas, and IV still giving him antibiotics and morphine, another tube feeding him.
            And I thought about you and wondered what you, the other driver, would do this Easter Sunday. Attend the church of your choosing? Sleep late? Enjoy dinner with family and friends? It’s nice to have options, isn’t it? We wish Ron had them.
           I could, if I wanted, get your name from the police report. It is in my files. And, in this day of the world-wide web, it would be easy to find you. But I prefer to think of you as nameless and faceless. It’s easier that way. Allowing you to have an identity would make you too real. There is a chance—however slim—that I could feel sympathy for you. Or hate. I am not a vindictive person, but the longer Ron remains in intensive care, the more surgeries and complications that arise, the more time our children miss with their father, the angrier I get.
            In the fifty-one days since the accident, have you ever thought of Ron? Does the blur of the accident plague your dreams? Do you still speed down Paoli Pike and run red lights? Or does the memory of March 1 cause you to slow down—maybe a little—as you pass Five Points Road?
            Ron’s accident has changed our lives. There is no going back. I hope it has changed yours as well. It is the only way I can find any reconciliation with this whole, awful event. It is the only way I can sleep.
            Easter Sunday. The day Jesus rose from the ground, the penalty for our sins fully paid. It is a day of rejoicing and hope for those who believe in Him. Despite the fact that Ron remains hospitalized, and the children and I will attend church without him and dine without him, it is a blessed day for us. Christ lives. Ron lives. We have hope. We have peace.
            Do you?
May 2, 2000. 7AM
            This morning we awakened to a light coating of snow! This crystal surprise—so late in the spring—reminded me of the enchantment of childhood, when a snowstorm on Sunday was guarantee of a Monday free from school, frolicking in the soft, white powder.
            Ah, snow! Despite the damage and the hazards a snowstorm can cause, who does not delight in watching the gently falling flakes, pressing our noses against the windowpane? Snow brings magic.
            It is magic reminiscent of Frosty and his enchanted hat, reindeer that can fly, and ice queens whose hearts can be melted by love. Snow makes us children once again, inspiring us with wonder. It makes us believe, if only briefly, in magic.
            It demonstrates to us once again God’s power and control over the world.
            Ron is still in the hospital.
            My water heater still leaks.
            My bank account holds a negative balance.
            There are a thousand questions to which I have no answers.
            But tiny crystalline structures, no two alike, each a unique and beautiful creation, fall from the sky and astound me once again with their beauty.
            God is still in control. It’s all I really need to know.
MAY 8, 2000. 4PM.
            Life on One North is predictable. Now settled in a room near the nursing station, free from the pancreatic drain, Ron is starting to look more like a human being. Slowly, his pancreas is digesting food and while the central line will remain in for a while longer, lime gelatin and chicken broth now work their way into his system. He is pale. Like legendary vampires, he has not seen the sun. We make his room as cheerful as we can. A poster saying, “Get Well Soon!” and signed by every student at Westtown Middle School decorates an entire wall. Each day, I tack up new cards sent by my students, oblivious to the marks I am making on the wall. Doctors and nurses come in daily to read the new arrivals.
            There are flowers and books and treats he cannot yet eat but shares with frequent visitors. Balloons are tied to his bed rail. The infection is gone, his lungs are clear, and the pleuravac has been moved to the aid of someone else. Dr. Huffman talks about him going back to rehab.
            But I cannot let that happen. The guilt that surrounded me from the pneumonia incident still grips me. Despite the care he will need, I will bring him home when he is ready. I will rearrange my life. I will give up sleeping. But I will not send him back to Harlee Manor.
            Dr. Huffman comes in for her daily chat, admiring the cards on the wall and the fresh bouquet of flowers from the church. Kelvin from Ron’s plant has just been here and given me an envelope of money collected from the guys on Ron’s floor. It will pay the mortgage this month. I make a mental note to send an e-mail thanking them all. At least twenty people from Heinz have asked me to add them to my weekly updates. Most will e-mail me back.
            I continue to pray for you and your family.
            I admire your strength and faith.
            Please let me know if there is anything I can do.
            You should be a writer; I love reading your reports on Ron!
            Joan smiles at me. “Yes, I think…I really think…we can talk about releasing Ron. I want to keep an eye on his lungs, do another X-ray tomorrow to make sure we won’t have a relapse of pneumonia. But everything else looks good.” She looks over the chart. “Is Friday afternoon good for you?” It is like Joan to always be concerned with my schedule and not expect me to bend to hers.
            I nod. “I can be here by 4. Will the visiting nurse be able to come on Saturday? Or will we will be on our own until Monday?”
            Joan pauses to think. “I’ll talk to them myself, tell them that someone needs to come Friday night and Saturday. Can you get someone to be with Ron while you are at work? His parents, maybe?”
            I nod with more optimism than I feel. “We’ll work it out.”
            “I have a few suggestions,” she says. “Get a little refrigerator in his bedroom or at least an ice chest. Keep water and juice in it so he doesn’t get dehydrated. And put some extra cushions on your chairs. Ron’s going to have trouble getting up and down. You have steps?” I nod. “He shouldn’t use them alone. And I don’t think you’re the candidate to help him up and down. His dad, maybe?”
            “Maybe,” I say. “We’ll work it out.” My mind has gone into overdrive. This is Wednesday and I have a conference with Allen’s teacher tonight. Tomorrow is graduate school. When, exactly, will I pull all of this together? I remind myself that this is about Ron, not me. He’s coming home. He needs to be home.
MAY 8, 2000. 8PM.
            Cris has been Allen’s caseworker for two years now. As the mother of a special education student, I assist with the writing of Allen’s Individualized Educational Program (IEP) each year. Cris has been sympathetic to Allen’s feelings these last few months. She is jubilant that Ron is coming home.
            “Allen worries, you know,” she confides to me. “At first, after Mr. Cobourn’s accident, he seemed really withdrawn and scared. I thought about referring him to Dr. Purcell.” I nod, knowing Cris would have called me had it remained a concern. “But then it seemed as if he grew up. It was kind of amazing to see.” I smile and tell her the story of the shillelagh. She presses a hand to her pregnant belly. “I can’t wait to be a mom,” she says. “So many wonderful things happen!”
            Allen will be mainstreamed into a regular science class next year and I am concerned about the textbook he will be expected to use. Cris says she will give me a copy of the book and put me in touch with the science teacher he’ll have. I make some notes on ways to adapt the book to Allen’s needs: go over the vocabulary with him ahead of time, make outlines, read ahead. Cris and I talk about the adjustments Allen will need to make with his dad back him again. “Good ones,” she says. “But we’ll all be understanding if his attention in class wanders. There are bound to be challenges.”
            It is 9:00 when I leave the middle school and I thank Cris exuberantly for her time. She has been a mainstay to Allen this year. “Good luck,” she says and gives me a hug. She has sent me several notes during this interim, assuring me that she is praying for our family. I tell her I will pray for her and the new baby.
            I remember this clearly: looking up at the stars as I come out of the school and cross the parking lot to my car. I remember marveling at the distance to the stars, the miracle of light reaching us millions of years after it has left its own planet. I remember breathing deeply and holding the air in my lungs, letting it out slowly. I remember thanking God that Ron was on his way home and praying for the strength to handle it. I remember thinking, “We made it.”
            When I arrive home there is a message, carefully written out and left by the phone. Call Dr. Azer at the hospital. Very important. There is a beeper number beside the message.
            My heart sinks.
MAY 8, 2000. 10 PM.
            “I tried to reach Dr. Huffman,” says the very young Dr. Azer. She is blonde and pretty, dressed in green scrubs and the same type of surgical clogs Joan wears. “And when I couldn’t, I called Dr. Thumble. He said to do a CT scan and reinsert the pic line. We’ve also got him hooked up to the telemetry machine because of the heart arrhythmia.” She pauses at the door to the cardiac unit. “I don’t want you to be alarmed by the machines,” she says.
            I want to laugh. I have seen more machines on my husband than she can possibly imagine. “I’ll be okay,” I assure her.
            “I was doing rounds and I knew Mr. Cobourn was scheduled to be released on Friday. So when I noticed the fever and chest sounds, I was a little worried.”
            “So it’s his lungs?” I ask.
            She shakes her head. “I’m not sure. There are decreased breath sounds, but I really think it’s an infection.”
            “We’ve been through several.”
            She nods sympathetically. “I’ve read over his chart. It’s pretty thick. You guys have been through a lot.”
            “We thought it was over. Hoped it was over.” I almost laugh.
            Her blue eyes fasten on mine. “I wasn’t really sure what to do, you know. It could have just been an elevation of temperature. Sometimes that happens at night.” She is preaching to the choir. “But I wanted to be cautious. I know he’s lost a lot of weight. We don’t want him going home and coming right back.”
            I thank her for her thoroughness. I am relieved that the infection was caught before he came home. She leaves me at the door to Ron’s room. “Just for a few minutes,” she says. “Visiting hours are over, but the nurses will ignore you for a while.” She promises to run some more tests in the morning and call me at school.
            Ron is still awake when I enter his room, staring out the window. “Hey,” I say. “I know you’re disappointed. So are we.”
            He shrugs. “I thought I was ready to come home. I guess the time’s not right yet.” I hold his hand and we talk for a few minutes, trying to accept that we need to wait a while longer. We are both disappointed.
            But I am lying to both Ron and myself. I am not so much disappointed as relieved. For a while longer, my critically ill husband will remain in someone else’s charge.